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Battle to Breathe

Take a look what my wonderful wife created to help spread awareness and understanding what someone with CF goes through. … [Read more...]

Final Results from Phase 2 Combination Study of Kalydeco and VX-809 Show Significant Improvements in Lung Function

A Phase 2 clinical trial of Kalydeco™ in combination with VX-809 showed significant improvements in lung function in people with the most common CF mutation, according to final results announced today by Vertex Pharmaceuticals Inc. Both Kalydeco and VX-809, a CF drug in development, are designed to treat the root cause of cystic fibrosis. Vertex developed Kalydeco and VX-809 with significant financial, clinical and scientific support from the Cystic Fibrosis Foundation. The 56-day study enrolled 109 people, … [Read more...]

Cystic Fibrosis Foundation Joins CVS/pharmacy in National Fundraising Campaign to Advance Medical Research

The Cystic Fibrosis Foundation has been selected by CVS/pharmacy to participate in a new fundraising campaign called Advancing Medical Research. The in-store fundraising effort will support medical research and help improve the quality of life for those living with cystic fibrosis. Supporters of the campaign can donate $1 or $3 at the register in CVS/Pharmacy locations and online at www.cvs.com/alscff. The campaign runs through June 30 in about 7,000 stores nationwide. “We are so grateful to CVS/pharmacy for … [Read more...]

2012 GS Fundraising Update

After all the cash and mail in donations have been updated to my team, Scott's Lifesavers, I am so proud to announce that we have raised $2,619.01 in 2012 which is 120% higher than our last years amount.  I'm so thankful for everyone's support and generosity during these hard times. I'm very optimistic that these funds will greatly help research and education of Cystic Fibrosis. We will continue to be fundraising through the end of the year and do more events.  Keep up to date by viewing my blog about … [Read more...]