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Cystic Fibrosis

Hey there friends and family!

Thank you for visiting my fund raising page for the CF Foundation. It is because people like you and foundations such as this that are the reason I am here today! Once again my team, Scott’s Lifesavers, and I will be participating in the Great Strides Walk in an effort to raise money for the Cystic Fibrosis Foundation. This is a genetically life-shortening disease that affects 30,000 children and young adults in the US today, with an unfortunate life expectancy of 37 years of age. My hope is that one day soon we will find a cure so that each us of with CF will have the opportunity to live a long and healthy life! Here is a snapshot of a day in the life of 30 year-old Scott Parks…

Cystic Fibrosis affects my lungs and digestive system by causing thick-sticky mucus to fill my air passages and digestive organs. Each morning I wake up and start my day with 4 nebulizing breathing treatments lasting an entire hour. This is followed up with a trip to the gym to workout my lungs and build muscle to help maintain my weight. After these exhausting two hours I come up home to chug down a protein shake and get ready for the workday. Throughout the day I take a total of 40 plus pills, most of these when I am eating or snacking. By the time I get home it is almost time for another breathing treatment lasting another hour. Then it’s time for a little rest and relaxation and then off to bed for me. While I am sleeping I am fed another 2200 calories through a machine through what is called a G-tube in my stomach. This is what my typical day looks like when I am healthy; unfortunately that is not always the case especially this past year. Within this last year I have been admitted to the hospital over 6 times and have been on IV antibiotics totaling throughout the year 3 ½ months. This can make life difficult in many areas, which has brought me to the realization that going on disability and receiving a lung transplant are in my near future.

I live my life every day with a positive attitude, thankful for each day I’ve had, and with a drive to fight this disease as long as live. I know it’s by God’s strength and protection I am still here today. Please know that each and every dollar donated counts towards the days that I may be able to keep the lungs that God has given me for one more day!!

I thank you in advance for your participation and support in this great foundation!

If you would like to donate please follow this link to donate online: http://www.cff.org/Great_Strides/ScottParks

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